The UK Babe Channels Forum

Same goes Forum Style! I've been silently admiring your posts, and recently come to learn of your illness. Like many have said, I hope you stay strong and fight all the way. Modern Medicine and science are truly amazing these days and hopefully there will be something available in the near future to help battle this. All the best mate!

Echoing the sentiments of the other members. Stay strong FS, we're all thinking of you. Hope all goes well.

my 2 pennies worth, your gonna die. i just hope it's as painless as possible. nobody know's how they will meet there maker. for me, i just hope i have some dignity!

stay strong mate.

Hard to know what to say.
I hope that you can draw a little warmth, comfort and support from us all here.
You have my sincerest best wishes and you are in our thoughts.
All the very best FS.

(27-03-2017 03:44 )terence Wrote: [ -> ]my 2 p pennies worth, your gonna die. i just hope it's as painless as possible. nobody know's how they will meet there maker. for me, i just hope i have some dignity!

stay strong mate.

"You're" and "their" (I may be a 'dead-man walking' but I am definitely still a grammar nazi!)

(27-03-2017 06:49 )snookered147 Wrote: [ -> ]I hope that you can draw a little warmth, comfort and support from us all here.

Trust me, I do. Parkinson's disease is not a terminal condition, so as long I make sure that if I think I have an infection I go to my doctor immediately then I should be ok, even if speaking this slowly and choking on my food all the time isn't exactly the kind of life I imagined for myself. But believe me, I know it could be a lot worse.

My heart goes out to you dude, my dad had that shit disease for 9 years before it finally did for him last year by weakening him to the point where pneumonia got him, just like you he never had the shaking,
Advice I would give is try to do a lot of exercise as once your muscles go they will not come back,
It's not all bleak mate dad still did a lot with it and was not until the last year it cought up with him,
Best of luck and don't let it beat you

Just Checking in to see how you are getting on mate. Not seen or heard from you in a while. Hope all is well!!!

Apologies for the delayed reply, I don't sign in to the forum that often and I must have missed your post.

I'm ok. I finally have an appointment for my DatScan - 15th June. At least I'll find out what I have. I'm kinda torn about it because it's been reassuring to put a name to it these last few months but if it is Parkinson's Disease then that's pretty much me talking slowly, falling over and choking on my food and drink for the rest of my life. But if it's not Parkinson's then I'm right back where I was three years ago, having no idea what I've got and starting the testing procedure again. It's a tricky call.

As for how I am? I don't think my speech could get much slower but it's a lot harder to talk than before. My voice is raspier than it was and I have to breathe between individual words, which tires me out. The right-hand side of my body is getting slower all the time, my hand and leg especially. I've given up trying to write and I type with my left hand only these days. My wife has called the occupational therapist to make some much needed changes to our house - because the hand rail beside our front steps are on the right-hand side, so I have difficulty gripping them.

But I'm coping ok with all this. After the week that Manchester and London have had, it puts it in perspective. Even though I think I'm dealing with a few upsetting things, I know things could be a lot worse. No plans yet to return to video posting yet. I'll get the scan done and see how the results play out. #Peace.

I had my DatScan on the 15th of June. It went well, apart from the flies being attracted to me because I was radioactive for 24 hours! I have the "results" now - it's not Parkinson's Disease or any similar type of condition. The neurologist I saw back in February will contact me to let me know what my options are and how to proceed. I'm still not sure what to think about it because the list of symptoms of Parkinson's reads like a breakdown of the last four years of my life. But I'm definitely relieved that it's not Parkinson's, because that gives me a glimmer of hope that I might get better at some point and talk normally again one day - even though it's all been downhill for the last three years.

I'll be honest, at this point in time I don't think I'll ever return to video posting on the forum. I'll keep my options open for now but as time passes it seems more and more unlikely. But as I have said before, the forum will survive without me and the excellent work of the cappers and vid posters will continue for many years. Thanks again for your support. Cheers, FS.

(14-07-2017 05:04 )Forum Style Wrote: [ -> ]I'll be honest, at this point in time I don't think I'll ever return to video posting on the forum.

I think we'd all just rather you were alive and healthy again. Seems crazy that this thread alone is almost 3 years old, and the problem obviously stretches back beyond that, and you're still looking for answers!

I know someone who had her first MS attack in May, but they can't call it MS until she's had another incident. Such is medicine

Keep fighting, FS